Last Updated: February 28, 2023, 06:00 IST
Rare Disease Day is critical as a result of it highlights advocates to lift consciousness about uncommon however debilitating diseases. (Representative picture: Shutterstock)
Rare Disease Day 2023: As the title suggests, at the present time highlights how sufferers get affected by such unusual illnesses, and why there’s a necessity for higher social help
RARE DISEASE DAY 2023: Every yr, the final day of February is noticed as Rare Disease Day, everywhere in the world. The worldwide day helps elevate consciousness among the many public and policymakers about uncommon illnesses that have an effect on a small share of individuals internationally. As the title suggests, at the present time highlights how sufferers get affected by such unusual illnesses, and why there’s a necessity for higher social help. Take a take a look at the theme of this yr’s occasion, its historical past and its significance.
Rare Disease Day 2023: Theme
As per the official web site for the uncommon Disease Day marketing campaign, there are two themes for the occasion this yr. The first one is “Share Your Colours,” which is a continuation of final yr’s theme. The second is “Light Up For Rare.” The themes urge the sufferers, most people, leaders, world governments and different policymakers to let go of the stigma related to uncommon illnesses.
The themes additionally urge all of the stakeholders to collectively assist the sufferers and their households fight the illnesses by creating mass consciousness, encouraging others to be alert and to come back ahead and assist such sufferers.
Rare Disease Day: History
Rare Disease Day was shaped in 2008. It was the European Organisation for Rare Diseases (EURORDIS) which coordinated and noticed the day on February 29, 2008. It was marked on at the present time, as February 29 is a “rare” day and solely happens each 4 years.
This occasion was noticed in lots of European nations as additionally in Canada, by way of the Canadian Organization for Rare Disorders (CORD). That yr was additionally the twenty fifth anniversary of the passing of the Orphan Drug Act within the United States to assist develop medicines for uncommon illnesses.
Rare Disease Day: Significance
Rare Disease Day is critical as a result of it highlights advocates to lift consciousness about uncommon however debilitating diseases. In India, a ‘National Registry for Rare Diseases’ has been created by the Indian Council for Medical Research (ICMR). In 2021, the Ministry of Health and Family Welfare accredited National Policy for Rare Diseases 2021 to cope with the administration and examination of such uncommon illnesses.
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