Navigating Life with a Bleeding Disorder

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Navigating Life with a Bleeding Disorder


In addition to the bodily signs of hemophilia, the dysfunction may also have a important emotional influence

Living with hemophilia could be difficult, however with correct administration and care, folks with the dysfunction can lead full and lively lives

Tarun has a situation known as hemophilia, which is a uncommon hereditary illness that impacts the physique’s potential to clot blood correctly. Even a minor scratch on his physique may end up in extended bleeding for hours. This is because of a deficiency or absence of particular clotting components within the blood, resulting in a tendency for extreme bleeding and bruising after surgical procedures or accidents. Hemophilia is brought on by a genetic mutation that impacts the manufacturing of clotting components within the blood, leading to impaired blood clotting capability.

“The disorder is typically inherited, and those with a family history of hemophilia are more likely to be affected. Haemophilia, primarily affects males, women can also be carriers of the gene. Living with hemophilia can be challenging, as the disorder can greatly impact the person’s daily life. Many people with hemophilia experience frequent bleeding episodes, which can cause pain, swelling, and stiffness in the affected joints. This can make it difficult to perform daily activities, such as walking or climbing stairs,” says Dr Jasashwi Chakraborty (MBBS, MD, DM) Consultant Hematologist, AMRI Hospitals, Dhakuria.

Individuals with this situation might expertise spontaneous bleeding into muscle groups and joints, in addition to extended bleeding following damage or surgical procedure. Other attainable signs might embody simple bruising, blood within the urine or stool, and extreme bleeding from the mouth or nostril.

In addition to the bodily signs of hemophilia, the dysfunction may also have a important emotional influence. “People with hemophilia may feel isolated or misunderstood, and they may struggle with feelings of anxiety or depression. The constant need for medical treatment and monitoring can also be stressful and overwhelming,” provides Dr Chakraborty.

Fortunately, there are remedies accessible for hemophilia that may assist handle the signs and forestall issues. “The primary treatment for hemophilia is replacement therapy, which involves infusing clotting factors into the bloodstream to help prevent bleeding episodes,” states Dr Chakraborty.

In addition to alternative remedy, different remedies might embody bodily remedy to enhance joint mobility, ache administration, and the usage of assistive gadgets akin to crutches or braces. “People with hemophilia may also benefit from counseling or support groups, which can help them cope with the emotional aspects of the disorder,” opines Dr Chakraborty.

Living with hemophilia could be difficult, however with correct administration and care, folks with the dysfunction can lead full and lively lives. “It is important for those with hemophilia to work closely with their healthcare providers to develop a treatment plan that meets their individual needs and goals. With the right care and support, people with hemophilia can successfully manage their symptoms and enjoy a high quality of life,” indicators off Dr Chakraborty.

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